An evaluation of the quality of life of children with ADHD and their families

KANDEMİR, Hasan; YÜCE, Murat; KILIÇ, BİRİM GÜNAY; EKİNCİ, Suat

An evaluation of the quality of life of children with ADHD and their families

Hasan KANDEMİR, (Harran Üniversitesi, Tıp Fakültesi, Çocuk ve Ergen Psikiyatrisi Anabilim Dalı, Şanlıurfa, Türkiye)

Birim Günay KILIÇ, (Ankara Üniversitesi, Tıp Fakültesi, Çocuk ve Ergen Psikiyatrisi Anabilim Dalı, Ankara, Türkiye)

Suat EKİNCİ, (Balıklı Rum Hastanesi, Psikiyatri Kliniği, İstanbul, Türkiye)

Murat YÜCE (Ondokuz Mayıs Üniversitesi, Tıp Fakültesi, Çocuk ve Ergen Psikiyatrisi Anabilim Dalı, Samsun, Türkiye)

Anadolu Psikiyatri Dergisi

4 1

Yıl: 2014 Cilt: 15 Sayı: 3 Sayfa Aralığı: 265 - 271 Metin Dili: Türkçe İndeks Tarihi: 29-07-2022

An evaluation of the quality of life of children with ADHD and their families

Öz:

Amaç: Bu çalışmada, dikkat eksikliği hiperaktivite bozukluğu (DEHB) olan çocuklarda ve bu çocukların ailelerinde yaşam kalitesinin değerlendirilmesi ve rahatsızlığın psikososyal boyutunun incelenmesi amaçlanmıştır. Yöntem:Ankara Üniversitesi Tıp Fakültesi Çocuk Ruh Sağlığı ve Hastalıkları Anabilim Dalı'na başvuran DEHB tanısı ilk kezkonan veya bu tanıyla izlenen7-16 yaşları arasındaki 76 çocukla, önceden klinik başvurusu olmayan bir örneklemden seçilmiş, yaş ve cinsiyet gibi özellikler bakımından hasta grubuyla eşleştirilmiş 59 kişiyi içeren kontrol grubu çalışmaya alınmıştır. Bulgular: DEHB'liçocukların okul başarıları daha kötü ve okula devamsızlık süresi daha fazla bulunmuştur. SF-36 verilerine göre DEHB'li grupta ağrı,genel sağlık, vitalite enerji, mental sağlık altölçek puanlarında kontrol grubuna göre anlamlı fark saptanmıştır. ÇİYKÖ çocuk ölçeğinde psikososyal sağlık puanı ve ölçek toplam puanı alt ölçeklerinde DEHB grubunda kontrol grubuna göre anlamlı düşüklük bulunmuştur. ÇİYKÖ-anababa psikososyal sağlık puanı ve ölçek toplam puanı DEHB'li grupta anlamlı düzeyde düşük bulunmuştur. ADÖ verilerine bakıldığında, problem çözme, iletişim, duygusal tepki verebilme, genel işlev ler, gereken ilgiyi gösterme ve roller alt ölçeklerinde iki grup arasında anlamlı fark olduğu saptanmıştır. Tartışma:Bu çalışmada DEHB'li çocuklar ve ailelerinde yaşam kalitesinin değerlendirildiği bazı alanlarda kontrol grubuna oranla daha olumsuz bir durum sergiledikleri belirlenmiştir. Çocuk ruh sağlığı ve hastalıkları kliniklerinde DEHB'-nin klinik yönü kadar psikososyal boyutu da gözardı edilmemelidir.

Anahtar Kelime:

Konular: Psikiyatri

DEHB'liçocuklar ve ailelerinde yaşam kalitesinin değerlendirilmesi

Öz:

Objective: This study evaluated the quality of life of children with attention-deficit/hyperactivity disorder (ADHD) and their families to identify the effects of the psychosocial distress associated with the disorder. Methods: Seventy-six children and adolescents aged 7 to 16 with ADHD who had been referred to the Ankara University School of Medicine Department of Child and Adolescent Psychiatry and 59 age and gender matched control children who had never been referred to a child psychiatric clinic were included in the study. The Pediatric Quality of Life Inventory (PedsQL), Short Form-36, Strengths and Difficulties Questionnaire, Turgay's Diagnostic and Statistical Manual of Mental Disorders, 4th edition (DSM-IV)-Based Child and Adolescent Behavior Disorders Screening and Rating Scale, and the McMaster Family Assessment Device (FAD) were administered. Results: The children with ADHD showed lower school achievements and had more school absences than the control group. In SF-36, parents of the children with ADHD showed statistically significant differences in their pain, general health, vital energy, and mental health subscale scores compared to the control group. The PedsQL-child scale psychosocial health subscale and total scale scores of the ADHD patients were significantly lower than the control group. The PedsQL-parent psychosocial health and total scale scores of the ADHD group were significantly lower than the control group. In the McMaster (FAD) results, there were significant differences in the problem-solving, communication, roles, affective responsiveness, and affective involvement subscale scores. Conclusion: The results of this study suggest that children with ADHD and their families have poorer quality of life in some domains. In child and adolescent psychiatric clinics, the psychosocial and clinical aspects of ADHD must be taken into account

Anahtar Kelime:

Konular: Psikiyatri

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık

American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders (4th ed.). Washington, DC: American Psychiatric Association, 2000.
Biederman J, Faraone SV. Attention-deŞcit hyperactivity disorder. Lancet 2005; 366:237- 248.
Cantwell DP. Attention deficit disorder: a review of the past 10 years. J Am Acad Child Psy 1996; 35:978-987.
Spencer TJ, Biederman J, Mick E. Attention- deficit/hyperactivity disorder: Diagnosis, lifespan, comorbidities, and neurobiology. Ambul Pediatr 2007; 7:73-81.
Weis M, Weis G. Attention deficit hyperactivity disorder. M Lewis (Ed.), Child and Adolescent Psychiatry, third ed., Philadelphia, MA: Lippincott Williams & Wilkins, 2002, p.645-670.
Landgraf JM, Rich M, Rappaport L. Measuring quality of life in children with attention-deficit/ hyperactivity disorder and their families: develop- ment and evaluation of a new tool. Arch Pediatr Adoles Med 2002; 156(4):384-391.
Hakkaart-van Roijen L, Zwirs BW, Bouwmans C, Tan SS, Schulpen TW, Vlasveld L, et al. Soci- etal costs and quality of life of children suffering from attention deficient hyperactivity disorder (ADHD). Eur Chil Adolesc Psychiatry 2007; 16(5):316-326.
Klassen AF, Miller A, Fine S. Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics 2004; 5:541-547.
Barkley RA. Attention-DeŞcit/Hyperactivity Disor- der: A Handbook for Diagnosis and Treatment. Third ed., New York: Guilford Press, 2006.
Schreyer I, Hampel P. ADHD among boys in childhood: quality of life and parenting behavior. Z Kinder Jugendpsychiatr Psychother 2009; 37:69-75.
Goodman R, Ford T, Simmons H, Gatward R, Meltzer H. Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiat- ric disorders in a community sample. Br J Psychiatry 2000; 177:534-539.
Turgay A. Disruptive behavior disorders child and adolescent screening and rating scale for chil- dren, adolescents, parents, and teachers. West Blomfield, MI: Integrative Therapy Institute Publi- cation, 1994.
Ercan ES, Amado S, Somer O, Cıkoglu S. Devel opment of a test battery for the assessment of attention deficit hyperactivity disorder. Turk J Child Adolesc Ment Health 2001; 8:132-144.
Varni JW, Seid M, Rode CA. The PedsQL: mea- surement model for the pediatric quality of life inventory. Medic Care 1999; 37:126-139.
Memik NC, Agaoglu B, Coskun A, Uneri OS, Karakaya I. The validity and reliability of the Turkish Pediatric Quality of Life Inventory for children 13-18 years old.Turk J Psychiatr 2007; 18:353-363.
Memik NC, Agaoglul B, Coskun A, Karakaya I. The validity and reliability of Pediatric Quality of Life Inventory in 8-12 years old Turkish children. Turk J Child Adolesc Ment Health 2008; 15:87- 98.
Waren JE, Sherbourne CD. The MOS 36-item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30:473-483.
Koçyiğit H, Aydemir Ö, Ölmez N, Memiş A. The validity and reliability of the Turkish version of SF-36. ilaç ve Tedavi Dergisi 1999; 12:102-106.
Epstein NB, Bolwin LM, Bishop DS. The McMas- ter Family Assessment Device. Mar Fam Therap 1983; 9:171-180.
Bulut I. Aile Değerlendirme Ölçeği El Kitabı. Ankara: Özgüzeliş Matbaası, 1990.
Faraone SV, Biederman J, Weiffenbach B, Keith T, Chu MP, Weaver A, et al. Dopamine D4 gene 7-repeat allele and attention deficit hyperactivity disorder. Am J Psychiatry 1999; 5:768-770.
Hofstra MB, Van der Ende J, Verhulst FC. Conti- nuity and change of psychopathology from child- hood into adulthood: a 14-year follow-up study. J Am Acad Child Psychiatry 2000; 39:850-858.
Schmeck K, Poustka F. Quality of life and child psychiatric disorders. H Katschnig, H Freeman, N Sartorius (Eds.), Qual Life Ment Dis 1997; 1:179-191.
Boekaerts M, Roder I. Stress, coping, and adjust- ment in children with a chronic disease: a review of the literature. Disab Rehabil 1999; 7:311-337.
Pless IB. Clinical assessment: physical and psychological functioning. Pediat Clin N Am 1984; 1:33-45.
Podolski CL, Nigg JT. Parent stress and coping in relation to child ADHD severity and associated child disruptive behavior problems. J Clin Child Psychol 2001; 4:503-513.
Faraone SV, Biederman J, Chen WJ, Milberger S, Warburton R, Tsuang MT. Genetic hetero- geneity in attention-deficit hyperactivity disorder (ADHD): gender, psychiatric comorbidity, and maternal ADHD. J Abnorm Psychol 1995; 2:334- 345.
Harpin VA. The effect of ADHD on the life of an individual, their family, and community from preschool to adult life. Arch Dis Child 2005; 90(Suppl.1):i2-7.
Barkley RA, Fischer M, Edelbrock C, Smallish L. The adolescent outcome of hyperactive children diagnosed by research criteria--III. Mother-child interactions, family conflicts and maternal psychopathology. J Child Psychol Psychiatr 1991; 2:233-255.
Matza LS, Rentz AM, Secnik K, Swensen AR, Revicki DA, Michelson D, et al. The link between health-related quality of life and clinical symp- toms among children with attention-deficit hyper- activity disorder. J Dev Behav Pediatr 2004; 3:166-174.
Escobar R, Soutullo CA, Hervas A, Gastaminza X, Polavieja P, Gilaberte I. Worse quality of life for children with newly diagnosed attention- deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 2005; 3:e364-369.
Sawyer MG, Whaites L, Rey JM, Hazell PL, Graetz BW, Baghurst P. Health-related quality of life of children and adolescents with mental disorders. J Am Acad Child Psychiatr 2002; 5:530-537.
Varni JW, Burwinkle TM. The PedsQL as a patient-reported outcome in children and adoles- cents with attention-deficit/hyperactivity disorder: a population-based study. Health Q Life Outcom 2006; 4:26-34.
Krueger M, Kendall J. Descriptions of self: an exploratory study of adolescents with ADHD. J Child Psychiatr Nurs 2001; 2:61-72.
Able SL, Johnston JA, Adler LA, Swindle RW. Functional and psychosocial impairment in adults with undiagnosed ADHD. Psychol Med 2007; 1: 97-107.
Bastiaansen D, Koot HM, Ferdinand RF, Verhulst FC. Quality of life in children with psychiatric disorders: self, parent, and clinician report. J Am Acad Child Psychiatry 2004; 2:221-230.
Eiser C, Morse R. Can parents rate their child's health-related quality of life? Results of a system- atic review. Qual Life Res 2001; 4:347-357.
Pekcanlar A, Turgay A, Miral S, Baykara A. Family functioning in attention deficit hyperacti- vity disorder. Turk J Child Ment Health 1999; 2:99-107.
Özcan C, Oflaz F, Türkbay T. Comparison of empathy in parents of children with attention deficit hyperactivity disorder and co-occurence of oppositional defiant disorder. Turk J Child Ment Health 2003; 3:108-114.
Kılıç BG, Sener S. Family functioning and psychosocial characteristics in children with attention deficit hyperactivity disorder with co- morbid oppositional defiant disorder or conduct disorder. Turk J Psychiatry 2005; 1:21-28.
Satake H, Yamashita H, Yoshida K. The family psychosocial characteristics of children with attention-deficit hyperactivity disorder with or without oppositional o conduct problems in Japan. Child Psychiatry Hum Dev 2004; 3:219- 235.

APA	KANDEMİR H, KILIÇ B, EKİNCİ S, YÜCE M (2014). An evaluation of the quality of life of children with ADHD and their families. , 265 - 271.
Chicago	KANDEMİR Hasan,KILIÇ BİRİM GÜNAY,EKİNCİ Suat,YÜCE Murat An evaluation of the quality of life of children with ADHD and their families. (2014): 265 - 271.
MLA	KANDEMİR Hasan,KILIÇ BİRİM GÜNAY,EKİNCİ Suat,YÜCE Murat An evaluation of the quality of life of children with ADHD and their families. , 2014, ss.265 - 271.
AMA	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M An evaluation of the quality of life of children with ADHD and their families. . 2014; 265 - 271.
Vancouver	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M An evaluation of the quality of life of children with ADHD and their families. . 2014; 265 - 271.
IEEE	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M "An evaluation of the quality of life of children with ADHD and their families." , ss.265 - 271, 2014.
ISNAD	KANDEMİR, Hasan vd. "An evaluation of the quality of life of children with ADHD and their families". (2014), 265-271.

APA	KANDEMİR H, KILIÇ B, EKİNCİ S, YÜCE M (2014). An evaluation of the quality of life of children with ADHD and their families. Anadolu Psikiyatri Dergisi, 15(3), 265 - 271.
Chicago	KANDEMİR Hasan,KILIÇ BİRİM GÜNAY,EKİNCİ Suat,YÜCE Murat An evaluation of the quality of life of children with ADHD and their families. Anadolu Psikiyatri Dergisi 15, no.3 (2014): 265 - 271.
MLA	KANDEMİR Hasan,KILIÇ BİRİM GÜNAY,EKİNCİ Suat,YÜCE Murat An evaluation of the quality of life of children with ADHD and their families. Anadolu Psikiyatri Dergisi, vol.15, no.3, 2014, ss.265 - 271.
AMA	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M An evaluation of the quality of life of children with ADHD and their families. Anadolu Psikiyatri Dergisi. 2014; 15(3): 265 - 271.
Vancouver	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M An evaluation of the quality of life of children with ADHD and their families. Anadolu Psikiyatri Dergisi. 2014; 15(3): 265 - 271.
IEEE	KANDEMİR H,KILIÇ B,EKİNCİ S,YÜCE M "An evaluation of the quality of life of children with ADHD and their families." Anadolu Psikiyatri Dergisi, 15, ss.265 - 271, 2014.
ISNAD	KANDEMİR, Hasan vd. "An evaluation of the quality of life of children with ADHD and their families". Anadolu Psikiyatri Dergisi 15/3 (2014), 265-271.