Living with the patient who has persistence vegetative state: a qualitative study
Yıl: 2018 Cilt: 25 Sayı: 1 Sayfa Aralığı: 51 - 56 Metin Dili: İngilizce DOI: 10.5455/jtomc.2017.12.150 İndeks Tarihi: 01-10-2018
Living with the patient who has persistence vegetative state: a qualitative study
Öz: Aim: The purpose of this research is to discover the experiences of the families with Persistence Vegetative State (PVS) patients have during homecare after being discharged from Palliative Care Center. In this study, it has been tried to bring out the difficulties occurring during homecare and the reasons for these difficulties.Material and Methods: The study is envisioned to be qualitative in regards with phenomenological approach, face to face and semistructured interviews. The study carried out with the 17 family members of patients with PVS voluntarily at their houses. Interviews were analyzed according to qualitative content analysis.Results: The age average of the family members in this study were 48.2±14.3 year, 12(70.6%) of them were woman. 7(41,2%) of the care providers were the spouse of the patient. The families gave homecare at a median value of 466(IQR =326) days. The study results brought out 4 main themes. The main themes were; Severe Burden, Concern/Fear, Limitations/Incompetencies, Hope/ Acceptance/Rejection.Conclusions: The study results indicate that it is very tough for families to have patients with PVS and they have to go through some strains as a result of the circumstances. With this study, it’s set forth that in order to reintegrate these families into the society, support the ones with financial, physical and psychosocial problems, there has to be a social, health related and economicinterference and policies have to be developed.
Anahtar Kelime: Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
- Jennett B. The vegetative state. J Neurol Neurosurg Psychiatry 2002;73(4):355-7.
- Pagani M, Giovannetti AM, Covelli V, Sattin D, Leonardi M. Caregiving for patients in vegetative and minimally conscious states: perceived burden as a mediator in caregivers’ expression of needs and symptoms of depression and anxiety. J Clin Ppsychol Med Settings 2014;21(3):214-22.
- Imanigoghary ZP, Peyrovi HP, Nouhi EP, Kazemi MP. The Role of Nurses in Coping Process of Family Caregivers of Vegetative Patients: A Qualitative Study. Int J community Based Nurs Midwifery 2017;5(1):70-81.
- Noohi E, Peyrovi H, Imani Goghary Z, Kazemi M. Perception of social support among family caregivers of vegetative patients: A qualitative study. Conscious cogn 2016;41:150-8.
- Giovannetti AM, Cerniauskaite M, Leonardi M, Sattin D, Covelli V. Informal caregivers of patients with disorders of consciousness: experience of ambiguous loss. Brain inj 2015;29(4):473-80.
- Leonardi M, Giovannetti AM, Pagani M, Raggi A, Sattin D. Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: results from a national study. Brain inj 2012;26(10):1201-10.
- Giovannetti AM, Covelli V, Sattin D, Leonardi M. Caregivers of patients with disorder of consciousness: burden, quality of life and social support. Acta Neurol Scand 2015;132(4):259-69.
- Elvira de la Morena MJ, Cruzado JA. Caregivers of patients with disorders of consciousness: coping and prolonged grief. Acta Neurol Scand 2013;127(6):413-8.
- Cipolletta S, Pasi M, Avesani R. Vita tua, mors mea: The experience of family caregivers of patients in a vegetative state. J Health Psychol 2016;21(7):1197-206.
- Caicedo C. Health and Functioning of Families of Children With Special Health Care Needs Cared for in Home Care, Long-term Care, and Medical Day Care Settings. J Dev Behav Pediatr 2015;36(5):352-61.
- Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24(2):105-12.
- Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International journal for quality in health care 2007;19(6):349-57.
- Kahveci K, Dincer M, Doger C, Yarici A. Traumatic brain injury and palliative care: a retrospective analysis of 49 patients receiving palliative care during 2013-2016 in Turkey. Neural Regen Res 2017;12(1):77-83.
- Connor ST, Bermedo MCS. Global Atlas of Palliative Care at the End of Life: The World Health Organization, Worldwide Palliative Care Alliance; 2014.
- Covelli V, Sattin D, Giovannetti AM, Scaratti C, Willems M, Leonardi M. Caregiver’s burden in disorders of consciousness: a longitudinal study. Acta Neurol Scand 2016;134(5):352-9.
- Goudarzi F, Abedi H, Zarea K, Ahmadi F. Multiple Victims: The Result of Caring Patients in Vegetative State. Iran Red Crescent Med J 2015;17(6):e23571.
- van Erp WS, Lavrijsen JC, van de Laar FA, Vos PE, Laureys S, Koopmans RT. The vegetative state/unresponsive wakefulness syndrome: a systematic review of prevalence studies. Eur J Neurol 2014;21(11):1361-8.
- Saout V, Ombredane MP, Mouillie JM, Marteau C, Mathe JF, Richard I. Patients in a permanent vegetative state or minimally conscious state in the Maine-et-Loire county of France: A cross-sectional, descriptive study. Ann Phys Rehabil Med 2010;53(2):96-104.
- Bastianelli A, Gius E, Cipolletta S. Changes over time in the quality of life, prolonged grief and family strain of family caregivers of patients in vegetative state: A pilot study. J Health Psychol 2016;21(5):844-52.
- Monti MM, Laureys S, Owen AM. The vegetative state. BMJ 2010;341(c3765):292-6.
- Theadom A, Feigin V, Reith FCM, Maas AIR. Epidemiology of Traumatic Brain Injury. In: Winn HR, editor. Youmans and Winn Neurological Surgery. Seventh ed: Elsevier; 2017. p. 2748-54.
- Estraneo A, Moretta P, Loreto V, Lanzillo B, Santoro L, Trojano L. Late recovery after traumatic, anoxic, or hemorrhagic long-lasting vegetative state. Neurology. 2010;75(3):239-45.
- Giustini A, Pistarini C, Pisoni C. Traumatic and nontraumatic brain injury. Handb Clin Neurol 2013;110:401-9.
- Chiambretto P, Moroni L, Guarnerio C, Bertolotti G, Prigerson HG. Prolonged grief and depression in caregivers of patients in vegetative state. Brain inj 2010;24(4):581-8.
- Shea N, Bayne T. The Vegetative State and the Science of Consciousness. Br J Philos sci 2010;61(3):459-84.
| APA | DİNÇER M, TORUN N (2018). Living with the patient who has persistence vegetative state: a qualitative study. , 51 - 56. 10.5455/jtomc.2017.12.150 |
| Chicago | DİNÇER Metin,TORUN Nazan Living with the patient who has persistence vegetative state: a qualitative study. (2018): 51 - 56. 10.5455/jtomc.2017.12.150 |
| MLA | DİNÇER Metin,TORUN Nazan Living with the patient who has persistence vegetative state: a qualitative study. , 2018, ss.51 - 56. 10.5455/jtomc.2017.12.150 |
| AMA | DİNÇER M,TORUN N Living with the patient who has persistence vegetative state: a qualitative study. . 2018; 51 - 56. 10.5455/jtomc.2017.12.150 |
| Vancouver | DİNÇER M,TORUN N Living with the patient who has persistence vegetative state: a qualitative study. . 2018; 51 - 56. 10.5455/jtomc.2017.12.150 |
| IEEE | DİNÇER M,TORUN N "Living with the patient who has persistence vegetative state: a qualitative study." , ss.51 - 56, 2018. 10.5455/jtomc.2017.12.150 |
| ISNAD | DİNÇER, Metin - TORUN, Nazan. "Living with the patient who has persistence vegetative state: a qualitative study". (2018), 51-56. https://doi.org/10.5455/jtomc.2017.12.150 |
| APA | DİNÇER M, TORUN N (2018). Living with the patient who has persistence vegetative state: a qualitative study. İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi, 25(1), 51 - 56. 10.5455/jtomc.2017.12.150 |
| Chicago | DİNÇER Metin,TORUN Nazan Living with the patient who has persistence vegetative state: a qualitative study. İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi 25, no.1 (2018): 51 - 56. 10.5455/jtomc.2017.12.150 |
| MLA | DİNÇER Metin,TORUN Nazan Living with the patient who has persistence vegetative state: a qualitative study. İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi, vol.25, no.1, 2018, ss.51 - 56. 10.5455/jtomc.2017.12.150 |
| AMA | DİNÇER M,TORUN N Living with the patient who has persistence vegetative state: a qualitative study. İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi. 2018; 25(1): 51 - 56. 10.5455/jtomc.2017.12.150 |
| Vancouver | DİNÇER M,TORUN N Living with the patient who has persistence vegetative state: a qualitative study. İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi. 2018; 25(1): 51 - 56. 10.5455/jtomc.2017.12.150 |
| IEEE | DİNÇER M,TORUN N "Living with the patient who has persistence vegetative state: a qualitative study." İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi, 25, ss.51 - 56, 2018. 10.5455/jtomc.2017.12.150 |
| ISNAD | DİNÇER, Metin - TORUN, Nazan. "Living with the patient who has persistence vegetative state: a qualitative study". İnönü Üniversitesi Turgut Özal Tıp Merkezi Dergisi 25/1 (2018), 51-56. https://doi.org/10.5455/jtomc.2017.12.150 |
