Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness

DEMİR DOĞAN, MELİKE; TOSUN, Esen; TEK, Ahmet Duran

Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness

Melike DEMİR DOĞAN, (Gümüşhane Üniversitesi)

Esen TOSUN, (Gümüşhane Üniversitesi)

Ahmet Duran TEK (Gümüşhane Üniversitesi)

Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi

2 0

Yıl: 2018 Cilt: 7 Sayı: 3 Sayfa Aralığı: 33 - 40 Metin Dili: İngilizce İndeks Tarihi: 17-12-2019

Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness

Öz:

Chronic illnesses with prolonged and slow progression are a rising problem in health care and the number of individuals with one or more chronic illnesses is increasing day by day. This cross-sectional study was conducted to determine the relationship between the perception of disease, self-care management, and quality of life in individuals with chronic illness. The sample of the study consisted of 127 patients who were hospitalized in Internal Medicine and Surgical clinics, had at least one chronic illness and agreed to participate in the study. The data were collected with personal information form, illness perception questionnaire (IPQ), self-care management scale in chronic illnesses (SCMP-G Questionnaire), and EQ-5D-5L general quality of life questionnaire.As a result of the statistical analysis, scores of the self-guarding subscale of self-care management scale were seen to be significantly higher in women than men. Self-care management of the patients with respiratory disease was significantly higher than diabetic patients. As a result of the present study, it was observed that the female patients had better self-care management compared to the male patients. However, the men were found to have a better quality of life than the women. Patients with respiratory disease had a better self-care management than diabetic patients.

Anahtar Kelime:

Konular: Genel ve Dahili Tıp

Kronik Hastalıklarda Hastalık Algısı, Yaşam Kalitesi, Öz-Bakım Yönetimi

Öz:

Uzun süreli ve yavaş ilerleyen kronik hastalıklar sağlık hizmetlerinde yükselen bir sorundur ve bir veya daha fazla kronik hastalığı olan bireylerin sayısı her geçen gün artmaktadır. Bu kesitsel çalışma, kronik hastalığı olan bireylerde hastalık algısı, öz bakım yönetimi ve yaşam kalitesi arasındaki ilişkiyi saptamak amacıyla yapıldı. Çalışmanın örneklemini iç hastalıkları ve cerrahi kliniklerinde yatan, en az bir kronik hastalığı olan ve çalışmaya katılmayı kabul eden 127 hasta oluşturdu. Veriler kişisel bilgi formu, Hastalık Algısı Anketi (IPQ), Kronik Hastalıklarda Öz Bakım Yönetimi Ölçeği (SCMP-G Anketi) ve Yaşam Kalitesi Anketinin EQ-5D-5L genel kalitesi ile toplanmıştır. İstatistiksel analiz sonucunda, öz bakım yönetimi ölçeğinin kendi kendini koruyan alt ölçeği puanlarının kadınlarda erkeklerden anlamlı düzeyde daha yüksek olduğu görülmüştür. Solunum sistemi hastalığı olan hastaların öz bakım yönetimi, diyabetik hastalardan anlamlı derecede yüksekti. Bu çalışmanın sonucunda, kadın hastaların erkek hastalara göre daha iyi öz bakım yönetimine sahip oldukları görülmüştür. Ancak, erkeklerin kadınlardan daha iyi bir yaşam kalitesine sahip oldukları bulunmuştur. Solunum hastalığı olan hastalar, diyabetik hastalardan daha iyi bir öz bakım yönetimine sahipti.

Anahtar Kelime:

Konular: Genel ve Dahili Tıp

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık

Mathers C.D., Loncar D. (2006). Projections of global mortality and burden of disease from 2002 to 2030. PLoS Med, 3, e442.
Özdemir Ü, Taşçı S. (2013). Kronik Hastalıklarda Psikososyal Sorunlar ve Bakım (Psychosocial Issues And Care In Chronic Illness). Erciyes Üniversitesi Sağlık Bilimleri Fakültesi Dergisi, 1(1), 57-72.
World Health Organization. Global Status Report on Noncommunicable Diseases 2014. Erişim: 11.12.2017, http://apps.who.int/iris/bitstream/10665/148114/1/97892415648 54_eng.pdf?ua=1
İncirkuş K, Nahcivan NÖ. (2011). Kronik hastalık bakımını değerlendirme ölçeği-hasta formu’nun Türkçe versiyonunun geçerlik ve güvenirliği. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, 4 (1), 102-109.
Erkoç Y, Yardım N. (2011). Türkiye’de Bulaşıcı Olmayan Hastalıklar ve Risk Faktörleri ile Mücadele Politikaları T.C. Sağlık Bakanlığı Yayınları, Anıl Matbaası, 50-119.
World Health Organization (WHO). Preventing chronic diseases: A vital investment: WHO Global Report. Geneva, 2005.
Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. (2002). Self-management approaches for people with chronic conditions: a review. Patient Educ Couns, 48, 177–187.
Glasgow R, David C, Funnell M, Beck A. (2003). Implementing practical interventions to support chronic illness self-management. Joint Comm J Qual Safety, 29,563-574.
Redman B. (2005). The ethics of self-management preparation for chronic illness. Nursing Ethics, 12, 360-369.
Jerant AF, Friederichs-Fitzwater MMV, Moore M. (2005). Patients’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling, 57, 300- 307.
Hançerlioğlu S. Kronik Hastalıklarda Öz-Bakım Yönetimi Ölçeği Ve Uyum Soru Formu’nun Türkçe’ye Uyarlanması, Geçerlik Ve Güvenirliği (Adapting Self-Care Management Questionnaire And Compliance Questionnaire In Chronic Diseases To Turkish, Validity And Reliability). Ege University Institute of Health Sciences. Unpublished masters thesis.2014.
Jansen D, Grootendorst D, Rijken M, et al. (2010). Predialysis patients’ perceives autonomy, self-esteem and labour participation: associations with illness perceptions and treatment perceptions. A crosssectional study. BMC Nephrol, 11.
Kaptein A, Hughes B, Scharloo M, et al. (2008). Illness perceptions about asthma are determinants of outcome. J Asthma, 45, 459-464.
Botha-Scheepers S, Riyazi N, Kroon HM, et al. (2006). Activity limitations in the lower extremities in patients with osteoarthritis: the modifying effects of illness perceptions and mental health. Osteoarthritis Cartilage, 14(11), 1104-10.
Scharloo M, Kaptein AA, Weinman J, et al. (2000). Patients‘ illness perceptions and coping as predictors of functional status in psoriasis: a 1-year follow-up. Br J Dermatol, 142, 899–907.
Scharloo M, Kaptein AA, Weinman JA, et al. (1999). Predicting functional status in patients with rheumatoid arthritis. J Rheumatol, 26, 1686–1693.
Petrie KJ, Weinman J. (2006). Why illness perceptions matter. Clin Med, 6, 536–539.
Donkin L, Ellis C J, Powell R, et al. (2006). Illness perceptions predict reassurance following negative exercise testing result. Psychol Health, 21, 421–430.
Weinman J, Petrie KJ, Moss-Morris R, Horne R. (1996). The Illness Perception Questionnaire: A new method for assessing the cognitive representation of illness. Psychol Health, 11, 431- 445.
Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick L. (2002). The revised illness perception questionnaire (IPQ-R). Psychol Health, 17, 1-16.
Kocaman N, Özkan M, Armay Z, Özkan S. (2007). Hastalık Algısı Ölçeğinin Türkçe uyarlamasının geçerlilik ve güvenilirlik çalışması. Anatolian Journal of Psychiatry, 8, 271- 280.
Jones LC. (2001). Measuring guarding as a self-care management process in chronic illness: The SCMP-G. Strickland OL, Dilorio C. Editorial. Measurement of nursing outcomes. New York: Springer Publishing Company, 150-158
EuroQol (2013). EQ-5D-5L scale. http://www.euroqol.org/home.html (12.05.2013).
Balcık PY. Türkiye’de İleri Evre Küçük Hücreli Dışı Akciğer Kanserinde Pemetrexed Ve Gemcitabine Tedavilerinin Maliyet Etkililik Analizi (Cost-Effectiveness Analysis of Advanced Stage Non-Small Cell Lung Cancer Treatment Gemcitabine and pemetrexed in Turkey). Hacettepe University Institute of Social Sciences, Department of Health Management, Unpublished Doctoral Thesis. 2013.
Herdman M, Gudex C, Lloyd A, Janssen MF, Kind P, Parkin D, Bonsel G, Badia X. (2011). Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res, 20, 1727–1736.
Euroqol - A New Facility For The Measurement Of Health- Related Quality Of Life. Health Policy 1990; 3(16):199–208.
Schoen C, et al. (2010). How Health Insurance Design Affects Access to Care and Costs, by Income, in Eleven Countries. Health Aff, 29, 2323-34.
Alwan A. World Health Organization (2011) Global status report on noncommunicable diseases 2010.
Jovicic A, Holroyd-Leduc JM, Straus SE. (2006). Effects of self-management intervention on health outcomes of patients with heart failure: a systematic review of randomized controlled trials. BMC Cardiovasc Disord, 6, 43.
Effing T, Monninkhof EM, van der Valk PDLPM, van der Palen J, van Herwaarden CL, Partidge MR, et al. (2007). Selfmanagement education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev, CD002990.
Deakin T, McShane CE, Cade JE, Williams RD. (2005). Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev, CD003417.
van Houtum L, Rijken M, Heijmans M, Groenewegen P. (2015). Patient-Perceived Self-Management Tasks and Support Needs of People with Chronic Illness: Generic or Disease Specific? Ann Behav Med, 49, 221–229.
Cameron J, Worrall-Carter L, Riegel B, Lo SK, Stewart S. (2009). Testing a model of patient characteristics, psychologic status, and cognitive function as predictors of self-care in persons with chronic heart failure. Heart Lung, 38, 410–418.
Bos-Touwen I, Schuurmans M, Monninkhof EM, Korpershoek Y, Spruit-Bentvelzen L, Ertugrul-van der Graaf I, et al. (2015). Patient and Disease Characteristics Associated with Activation for Self-Management in Patients with Diabetes, Chronic Obstructive Pulmonary Disease, Chronic Heart Failure and Chronic Renal Disease: A Cross-Sectional Survey Study. PLoS ONE, 10(5), e0126400.
Davies L, Wilkinson M, Bonner S, et al. (2000). "Hospital at home" versus hospital care in patients with exacerbations of chronic obstructive pulmonary disease: prospective randomized controlled trial. BMJ journal, 321, 1265–1268.
Connelly CE. (1993). An empirical study of a model of selfcare in chronic illness. Clin Nurse Spec, 7, 247–253.
Telatar TG, Özcebe H. (2004). Yaşlı nüfus ve yaşam kalitelerinin yükseltilmesi. Turkish Journal of Geriatrics, 7, 162-5.
Thommasen HV, Zhang W. (2006). Impact of chronic disease on quality of life in Bella Coola Valley. Rural Remote Health, 6, 1-18.

APA	DEMİR DOĞAN M, TOSUN E, TEK A (2018). Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. , 33 - 40.
Chicago	DEMİR DOĞAN MELİKE,TOSUN Esen,TEK Ahmet Duran Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. (2018): 33 - 40.
MLA	DEMİR DOĞAN MELİKE,TOSUN Esen,TEK Ahmet Duran Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. , 2018, ss.33 - 40.
AMA	DEMİR DOĞAN M,TOSUN E,TEK A Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. . 2018; 33 - 40.
Vancouver	DEMİR DOĞAN M,TOSUN E,TEK A Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. . 2018; 33 - 40.
IEEE	DEMİR DOĞAN M,TOSUN E,TEK A "Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness." , ss.33 - 40, 2018.
ISNAD	DEMİR DOĞAN, MELİKE vd. "Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness". (2018), 33-40.

APA	DEMİR DOĞAN M, TOSUN E, TEK A (2018). Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 7(3), 33 - 40.
Chicago	DEMİR DOĞAN MELİKE,TOSUN Esen,TEK Ahmet Duran Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 7, no.3 (2018): 33 - 40.
MLA	DEMİR DOĞAN MELİKE,TOSUN Esen,TEK Ahmet Duran Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, vol.7, no.3, 2018, ss.33 - 40.
AMA	DEMİR DOĞAN M,TOSUN E,TEK A Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2018; 7(3): 33 - 40.
Vancouver	DEMİR DOĞAN M,TOSUN E,TEK A Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2018; 7(3): 33 - 40.
IEEE	DEMİR DOĞAN M,TOSUN E,TEK A "Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness." Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 7, ss.33 - 40, 2018.
ISNAD	DEMİR DOĞAN, MELİKE vd. "Perception Of Disease, Quality Of Life, Self-Care Management In Chronic Illness". Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 7/3 (2018), 33-40.