Yıl: 2019 Cilt: 30 Sayı: 3 Sayfa Aralığı: 161 - 167 Metin Dili: İngilizce İndeks Tarihi: 20-05-2020

AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY

Öz:
Purpose: This study aimed to investigate the family impact of children with congenital andacquired brain injury, the levels of depression in mothers, and the factors that might affect familyfunctioning.Methods: This study included 42 children with brain injury (20 congenital, 22 acquired) and theircaregiver mothers. Impact on Family Scale (IFS) was used to evaluate family impact and the BeckDepression Inventory for the level of depression in the mothers. The Functional Oral Intake Scalefor the status of oral intake of children.Results: This study illustrated that the levels of family impact (z=-1.161, p=0.246) and mothers'depression (z=-0.177, p=0.860) were similar in children with congenital and acquired brain injury.In this study, a relationship was found between the child's feeding position (z=-0.684, p=0.043) andfamily income level (z=5.981, p=0.046) with family impact.Conclusion: The family impact of having children with disabilities may be related to many factors.In order to understand this mechanism, future studies should be planned with a holistic approach.The results of these studies, provide information to be used in the development of interventionsfor parents of children with disabilities.
Anahtar Kelime:

Konular: Rehabilitasyon

KONJENİTAL VE EDİNSEL BEYİN HASARI OLAN ÇOCUKLARIN AİLE ETKİLENİMLERİNİN İNCELENMESİ

Öz:
Amaç: Çalışmanın amacı, konjenital ve edinsel beyin hasarı olan çocukların aile etkilenimlerini, annelerin depresyon düzeylerini ve aile etkilenimlerini etkileyebilecek faktörleri araştırmaktı. Yöntem: Çalışmaya 42 beyin hasarı tanısı almış çocuk (20 konjenital, 22 edinsel) ve onlara bakım veren anneleri dahil edildi. Ailelerin etkilenimi ölçmek için Aile Etki Ölçeği (AEÖ) ve annelerin depresyon düzeyini belirlemek için Beck Depresyon Ölçeği kullanıldı. Çocukların oral alım durumları Fonksiyonel Oral Alım Skalası kullanılarak belirlendi. Sonuçlar: Çalışma konjenital ve edinsel beyin hasarı tanısı olan çocuklarda aile etkilenimini (z=-1,161, p=0,246) ve annelerin depresyon düzeylerinin (z=-0,177, p=0,860) benzer olduğunu gösterdi. Çalışmada ayrıca çocuğun beslenme pozisyonu (z=-0,684, p=0,043) ve ailenin gelir düzeyinin (z=5,981, p=0,046) aile etkilenimi ile ilişkisi olduğunu saptandı. Tartışma: Engelli çocuğa sahibi olmanın aile üzerindeki etkisi pek çok faktörle ilişkili olabilir. Bu mekanizmayı anlamak için gelecekteki çalışmaların holistik bir yaklaşımla planlanması gerekir. Bu çalışmaların sonuçları; engelli çocukların ailelerine yönelik müdahalelerin geliştirilmesinde kullanılacak bilgiler sağlayacaktır.
Anahtar Kelime:

Konular: Rehabilitasyon
Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
  • 1. Greenwald BD, Burnett DM, Miller MA. Congenital and acquired brain injury. 1. Brain injury: epidemiology and pathophysiology. Arch Phys Med Rehabil. 2003;84(3 Suppl 1):3-7.
  • 2. Kurtzer White E, Luterman D. Families and children with hearing loss: grief and coping. Ment Retard Dev Disabil Res Rev. 2003;9(4):232-5.
  • 3. Micklewright JL, King TZ, O’Toole K, Henrich C, Floyd FJ. Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury. J Int Neuropsychol Soc. 2012;18(2):343-50.
  • 4. Guyard A, Michelsen SI, Arnaud C, Fauconnier J. Family adaptation to cerebral palsy in adolescents: a European multicenter study. Res Dev Disabil. 2017;61:138-50.
  • 5. Conley-Jung C, Olkin R. Mothers with visual impairments who are raising young children. JVIB. 2001;95(01):14-29.
  • 6. Bogart KR, Tickle-Degnen L, Ambady N. Compensatory expressive behavior for facial paralysis: adaptation to congenital or acquired disability. Rehabil Psychol. 2012;57(1):43-51.
  • 7. Palisano RJ, Almarsi N, Chiarello LA, Orlin MN, Bagley A, Maggs J. Family needs of parents of children and youth with cerebral palsy. Child Care Health Dev. 2010;36(1):85-92.
  • 8. Cavlak U. Reliability and validity of Turkish version of the Impact on Family Scale: assessment of depressive symptoms and quality of life in mothers with cerebral palsied children. J Med Sci. 2009;9(4):175-84.
  • 9. Hisli N. Beck Depresyon Envanterinin üniversite öğrencileri için geçerliği güvenirliği. Psikoloji Dergisi. 1989;23:3-13.
  • 10. Hisli N. Beck Depresyon Envanterinin geçerliği üzerine bir çalışma. Psikoloji Dergisi. 1989;22:118-26.
  • 11. Beck A, Ward C, Mendelsohn M, Mock J, Erbaugh J. An inventory for measuring depression. Arch Gen Psychiatry. 1961;4:561–71.
  • 12. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39:214–23.
  • 13. Günel MK, Mutlu A, Livanelioğlu A, El Ö, Baydar M, Peker Ö, et al. Kaba Motor Fonksiyon Sınıflandırma Sistemi (Genişletilmiş ve Yeniden Düzenlenmiş Şekli). https://canchild.ca/system/ tenon/assets/attachments/000/000/083/original/GMFCS-ER_ Translation-Turksih.pdf. Access: March 13, 2019
  • 14. Crary MA, Mann GDC, Groher ME. Initial psychometric assessment of a functional oral intake scale for dysphagia in stroke patients. Arch Phys Med Rehabil. 2005;86(8):1516-20.
  • 15. Dodrill P. Treatment of feeding and swallowing difficulties in infants and children. In: Groher MH, Crary MA, eds. Dysphagia- E-Book: clinical management in adults and children. St Louis: Elsevier; 2015: p.325-50.
  • 16. Fletcher HK. Attachment relationships between parents and their children: the impact of ‘the loss of the healthy child. In: Fletcher KH, Flood A, Hare JD, eds. Attachment in intellectual and developmental disability: a clinician’s guide to practice and research. West Sussex, UK: John Wiley & Sons; 2016: p. 33-58.
  • 17. Khanna R, Madhavan SS, Smith MJ, Patrick JH, Tworek C, Becker- Cottrill B. Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. J Autism Dev Disord. 2011;41(9):1214-27.
  • 18. Bogart KR. The role of disability self-concept in adaptation to congenital or acquired disability. Rehabil Psychol. 2014;59(1):107-15.
  • 19. de Kloet AJ, Lambregts SA, Berger MA, van Markus F, Wolterbeek R, Vlieland TPV. Family impact of acquired brain injury in children and youth. J Dev Behav Pediatr. 2015;36(5):342-51.
  • 20. J’May BR, Jaffe KM, Polissar NL, Fay GC, Liao S, Martin KM. Predictors of family functioning and change three years after traumatic brain injury in children. Arch Phys Med Rehabil. 1996;77(8):754-64.
  • 21. Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich NM. A Prospective study of long-term caregiver and family adaptation following brain injury in children. J Head Trauma Rehabil. 2002;17(2):96-111.
  • 22. Garro A. Coping patterns in mothers/caregivers of children with chronic feeding problems. J Pediatr Health Care. 2004;18(3):138- 44.
  • 23. Garro A, Thurman SK, Kerwin ME, Ducette JP. Parent/caregiver stress during pediatric hospitalization for chronic feeding problems. J Pediatr Nurs. 2005;20(4):268-75.
  • 24. Chung J, Evans J, Lee C, Lee J, Rabbani Y, Roxborough L, et al. Effectiveness of adaptive seating on sitting posture and postural control in children with cerebral palsy. Pediatr Phys Ther. 2008;20(4):303–17.
  • 25. Ryan SE, Campbell KA, Rigby PJ, Fishbein-Germon B, Hubley D, Chan B. The impact of adaptive seating devices on the lives of young children with cerebral palsy and their families. Arch Phys Med Rehabil. 2009;90(1):27-33.
  • 26. Bender SL, Carlson JS. An initial investigation of parenting stress, social-emotional protective factors, and behavior concerns within a head start population. J Educ Dev Psychol. 2013;3(1):113-23.
  • 27. Singer GH. Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. Am J Ment Retard. 2006;111(3):155-69.
  • 28. Shearn J, Todd S. Maternal employment and family responsibilities: The perspectives of mothers of children with intellectual disabilities. J Appl Res Intellect Disabil. 2000;13(3):109-31.
  • 29. Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. J Pediatr. 1999;103(6):1235-42.
APA İNAL Ö, Karahan S, öksüz ç (2019). AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. , 161 - 167.
Chicago İNAL ÖZGÜ,Karahan Sevilay,öksüz çiğdem AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. (2019): 161 - 167.
MLA İNAL ÖZGÜ,Karahan Sevilay,öksüz çiğdem AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. , 2019, ss.161 - 167.
AMA İNAL Ö,Karahan S,öksüz ç AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. . 2019; 161 - 167.
Vancouver İNAL Ö,Karahan S,öksüz ç AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. . 2019; 161 - 167.
IEEE İNAL Ö,Karahan S,öksüz ç "AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY." , ss.161 - 167, 2019.
ISNAD İNAL, ÖZGÜ vd. "AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY". (2019), 161-167.
APA İNAL Ö, Karahan S, öksüz ç (2019). AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online), 30(3), 161 - 167.
Chicago İNAL ÖZGÜ,Karahan Sevilay,öksüz çiğdem AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online) 30, no.3 (2019): 161 - 167.
MLA İNAL ÖZGÜ,Karahan Sevilay,öksüz çiğdem AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online), vol.30, no.3, 2019, ss.161 - 167.
AMA İNAL Ö,Karahan S,öksüz ç AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online). 2019; 30(3): 161 - 167.
Vancouver İNAL Ö,Karahan S,öksüz ç AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY. Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online). 2019; 30(3): 161 - 167.
IEEE İNAL Ö,Karahan S,öksüz ç "AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY." Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online), 30, ss.161 - 167, 2019.
ISNAD İNAL, ÖZGÜ vd. "AN INVESTIGATION OF FAMILY IMPACT OF CHILDREN WITH CONGENITAL AND ACQUIRED BRAIN INJURY". Türk Fizyoterapi ve Rehabilitasyon Dergisi (Online) 30/3 (2019), 161-167.