Yıl: 2020 Cilt: 21 Sayı: 4 Sayfa Aralığı: 275 - 280 Metin Dili: İngilizce DOI: 10.4274/imj.galenos.2020.38243 İndeks Tarihi: 25-10-2020

What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?

Öz:
Introduction: This study aimed to determine internet useamong a certain number of patients with regard to the threeprevalent rheumatic diseases in clinical practice and moreimportantly to evaluate the quality of information availableon the internet using the DISCERN scoring system.Methods: The study population consists of patients withrheumatoid arthritis, ankylosing spondylitis and fibromyalgia.As part of this study, we conducted a survey and recordedwhether or not they researched over the internet concerningtheir diseases. After the survey, we also tested the reliability ofthe websites. We analysed websites using the DISCERN scoringsystem in order to determine to what degree these websitescontained sufficient.Results: We found that 102 out of 173 cases (58.9%) used theinternet to get information about their disease, while 71 cases(41.04%) did not conduct any internet research. Accordingto the DISCERN scoring, the aforementioned websites wereevaluated with 15 questions in the survey. Consequently, it wasinferred that among these websites, 24 (27.2%) had high-level(4 to 5 points), 44 (50%) had medium-level (2 to 3 points) and20 (22.7%) had poor-level (1 point) quality and reliability.Conclusion: The digital interest that has gradually increasedin the recent years has become a concern as patients desireto have information on the course and treatment of theirrheumatic diseases. It should be acknowledged that patientswith long-term treatment and follow-up processes are notand will not be guided only by their doctors. Physicians mayimprove the quality of life of their patients and help themavoid unnecessary anxieties, if they regard the foregoing whenthey inform and instruct them
Anahtar Kelime:

Romatizma Hastalarının Hastalık Araştırması İnternet Kullanım Sıklığı Nedir? Hastalıklarıyla İlgili Bilgi Aldıkları İnternet Siteleri Ne Kadar Güvenilir ve Tedavi Üzerine Etkisi Nedir?

Öz:
Amaç: Bu çalışmanın amacı poliklinikte takipli romatoloji hastalarının hastalıklarının tedavisi hakkında internette araştırma yapma oranlarını, internetin hastaların tedavi ve takiplerine etkisini araştırmak ve hastaların rehber olarak kullandıkları internet sitelerinin güvenilirliklerini belirlemektir. Yöntemler: Çalışma popülasyonu romatoid artrit, ankilozan spondilit ve fibromiyaljili hastalardan oluşmaktadır. Bu çalışmanın bir parçası olarak, anket yapılmış ve internet üzerinden hastalara hastalıkları hakkında araştırma yapıp yapmadıklarını kayıt altına alınmıştır. Anket yapıldıktan sonra, web sitelerinin güvenilirliğini de test edilmiştir. Bu web sitelerinin hastalıklarla ilgili ne derece yeterli ve güvenilir bilgi içerdiğini belirlemek için DISCERN puanlama sistemini kullanarak web sitelerini analiz edilmiştir. Bulgular: Yüz yetmiş üç romatoloji hastasının geneline baktığımızda 102 olgu (%58,9) hastalığı hakkında bilgi almak için interneti kullanırken, 71 olgu (%41,04) internette araştırma yapmamıştı. DISCERN skorlamasında, ankette bulunan 15 soru eşliğinde internet siteleri değerlendirildiğinde 24’ü (%27,2) yüksek düzey (4-5 puan), 44’ü (%50) orta düzey (2-3 puan), 20’si (%22,7) kötü düzey (1 puan) kaliteye ve bilgi güvenilirliğine sahipti. Sonuç: Dijital ilgi, romatizmal hastalıkların seyri ve tedavisini irdelemek isteyen hastalar tarafından da kullanılmaktadır. Uzun soluklu tedavi ve takip süreci olan bu hastaların yönlendirilmesinde, günümüzde ve gelecekte sadece doktor kontrolü altında olamadığının bilinmesi ve mevcut websitelerinin gerek sağlık bakanlığı gerekse ilgili dernekler tarafından sıkı denetim altında tutulması ile hastaların yanlış bilgilendirilmesi ve yönlendirilmesinin önüne geçilebilir
Anahtar Kelime:

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
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APA Gurcan Atcı A, Tolu S (2020). What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. , 275 - 280. 10.4274/imj.galenos.2020.38243
Chicago Gurcan Atcı Aysel,Tolu Sena What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. (2020): 275 - 280. 10.4274/imj.galenos.2020.38243
MLA Gurcan Atcı Aysel,Tolu Sena What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. , 2020, ss.275 - 280. 10.4274/imj.galenos.2020.38243
AMA Gurcan Atcı A,Tolu S What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. . 2020; 275 - 280. 10.4274/imj.galenos.2020.38243
Vancouver Gurcan Atcı A,Tolu S What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. . 2020; 275 - 280. 10.4274/imj.galenos.2020.38243
IEEE Gurcan Atcı A,Tolu S "What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?." , ss.275 - 280, 2020. 10.4274/imj.galenos.2020.38243
ISNAD Gurcan Atcı, Aysel - Tolu, Sena. "What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?". (2020), 275-280. https://doi.org/10.4274/imj.galenos.2020.38243
APA Gurcan Atcı A, Tolu S (2020). What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. İstanbul Medical Journal, 21(4), 275 - 280. 10.4274/imj.galenos.2020.38243
Chicago Gurcan Atcı Aysel,Tolu Sena What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. İstanbul Medical Journal 21, no.4 (2020): 275 - 280. 10.4274/imj.galenos.2020.38243
MLA Gurcan Atcı Aysel,Tolu Sena What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. İstanbul Medical Journal, vol.21, no.4, 2020, ss.275 - 280. 10.4274/imj.galenos.2020.38243
AMA Gurcan Atcı A,Tolu S What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. İstanbul Medical Journal. 2020; 21(4): 275 - 280. 10.4274/imj.galenos.2020.38243
Vancouver Gurcan Atcı A,Tolu S What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?. İstanbul Medical Journal. 2020; 21(4): 275 - 280. 10.4274/imj.galenos.2020.38243
IEEE Gurcan Atcı A,Tolu S "What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?." İstanbul Medical Journal, 21, ss.275 - 280, 2020. 10.4274/imj.galenos.2020.38243
ISNAD Gurcan Atcı, Aysel - Tolu, Sena. "What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?". İstanbul Medical Journal 21/4 (2020), 275-280. https://doi.org/10.4274/imj.galenos.2020.38243