Aysel Gürcan ATÇI
(Baltalimanı Metin Sabancı Kemik ve Eklem Hastalıkları Eğitim ve Araştırma Hastanesi, Fiziksel Tıp ve Rehabilitasyon Kliniği, İstanbul, Türkiye)
(Medipol Üniversitesi, Tıp Fakültesi, Fiziksel Tıp ve Rehabilitasyon Anabilim Dalı, İstanbul, Türkiye)
Yıl: 2020Cilt: 21Sayı: 4ISSN: 2619-9793 / 2148-094XSayfa Aralığı: 275 - 280İngilizce

54 0
What is the Frequency of Internet Searches by Patients with Rheumatic Diseases? To What Degree are the Websites They Get Information from Reliable and What is the Effect of These Websites on Their Treatment?
Introduction: This study aimed to determine internet use among a certain number of patients with regard to the three prevalent rheumatic diseases in clinical practice and more importantly to evaluate the quality of information available on the internet using the DISCERN scoring system. Methods: The study population consists of patients with rheumatoid arthritis, ankylosing spondylitis and fibromyalgia. As part of this study, we conducted a survey and recorded whether or not they researched over the internet concerning their diseases. After the survey, we also tested the reliability of the websites. We analysed websites using the DISCERN scoring system in order to determine to what degree these websites contained sufficient. Results: We found that 102 out of 173 cases (58.9%) used the internet to get information about their disease, while 71 cases (41.04%) did not conduct any internet research. According to the DISCERN scoring, the aforementioned websites were evaluated with 15 questions in the survey. Consequently, it was inferred that among these websites, 24 (27.2%) had high-level (4 to 5 points), 44 (50%) had medium-level (2 to 3 points) and 20 (22.7%) had poor-level (1 point) quality and reliability. Conclusion: The digital interest that has gradually increased in the recent years has become a concern as patients desire to have information on the course and treatment of their rheumatic diseases. It should be acknowledged that patients with long-term treatment and follow-up processes are not and will not be guided only by their doctors. Physicians may improve the quality of life of their patients and help themavoid unnecessary anxieties, if they regard the foregoing when they inform and instruct them
DergiAraştırma MakalesiErişime Açık
  • 1. Zochling J, Smith EU. Seronegative spondyloarthritis. Best Pract Res Clin Rheumatol 2010; 24: 747-56.
  • 2. Alamanos Y, Drosos AA. Epidemiology of adult rheumatoid arthritis. Autoimmun Rev 2005; 4: 130-6.
  • 3. Wolfe F, Clauw DJ, Fitzcharles MA, Goldenberg DL, Katz RS, Mease P, et al. The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity. Arthritis Care Res (Hoboken) 2010; 62: 600-10.
  • 4. Dijilopedi. 2018 Türkiye İnternet Kullanım ve Sosyal Medya İstatistikleri. Available from URL: https://dijilopedi.com/2018-turkiye-internet-kullanimve-sosyal-medya-istatistikleri/ (last accessed 2019 Jan 18), 2018.
  • 5. Dijilopedi. 2018 İnternet Kullanım ve Sosyal Medya İstatistikleri. Available from URL: https://dijilopedi.com/2018-internet-kullanimi-ve-sosyal-medyaistatistikleri/ (last accessed 2019 Jan 18), 2018.
  • 6. Eng TR, Maxfield A, Patrick K, Deering MJ, Ratzan SC, Gustafson DH. Access to health information and support: a public highway or a private road? JAMA 1998; 280: 1371-5.
  • 7. Pew Research Center: More online, doing more: 16 million newcomers gain Internet access in the last half of 2000 as women, minorities, and families with modest incomes continue to surge online. Available from URL: https:// www.pewresearch.org/internet/2001/02/18/more-online-doing-more/ (last accessed 2016 June 26), 2001.
  • 8. Grandinetti DA. Doctors and the web: help your patients surf the net safely. Med Econ 2000; 77: 186-8, 194-6, 201.
  • 9. Daraz L, MacDermid JC, Wilkins S, Gibson J, Shaw L. The quality of websites addressing fibromyalgia: An assessment of quality and readability using standardised tools. BMJ Open 2011; 1: e000152.
  • 10. Cline RJ, Haynes KM. Consumer health information seeking on the Internet: The state of the art. Health Educ Res 2001; 16: 671-92.
  • 11. Aletaha D, Neogi T, Silman AJ, Funovits J, Felson DT, Bingham CO 3rd, et al. 2010 Rheumatoid arthritis classification criteria: an american college of rheumatology/european league against rheumatism collaborative initiative. Arthritis Rheum 2010; 62: 2569-81.
  • 12. van der Linden S, Valkenburg HA, Cats A. Evaluation of diagnostic criteria for ankylosing spondylitis: a proposal for modification of the New York criteria. Arthritis Rheum 1984; 27: 361-8.
  • 13. Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, et al. The American College of Rheumatology 1990 criteria for the classification of fibromyalgia: report of the Multicenter Criteria Committee. Arthritis Rheum 1990; 33: 160-72.
  • 14. Net Applications. Market Share Statistics for Internet Technologies. Available from: http://www.netmarketshare.com (last accessed 2016 June 26), 2014.
  • 15. Huberman BA, Pirolli PLT, Pitkow JE, Lukose RM. Strong regularities in World Wide Web surfing. Science 1998; 280: 95-7.
  • 16. Charnock D, Shepperd S, Needham G, Gann R. DISCERN: An instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health 1999; 53: 105-11.
  • 17. Galvez‐Sánchez CM, Duschek S, Reyes del Paso GA. Psychological impact of fibromyalgia: current perspectives. Psychol Res Behav Manag 2019; 12: 117- 27.
  • 18. Samanci Y, Celik SE. Low Back Pain and Internet: Infopollution. Turk Neurosurg 2017; 27: 804-8.
  • 19. Atci, IB, Yilmaz, H, Kocaman, U, Samanci MY. An evaluation of internet use by neurosurgery patients prior to lumbar disc surgery and of information available on internet. Clin Neurol Neurosurg 2017; 158: 56-9.

TÜBİTAK ULAKBİM Ulusal Akademik Ağ ve Bilgi Merkezi Cahit Arf Bilgi Merkezi © 2019 Tüm Hakları Saklıdır.