Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer
Yıl: 2021 Cilt: 29 Sayı: 1 Sayfa Aralığı: 113 - 123 Metin Dili: İngilizce DOI: 10.5152/FNJN.2021.19085 İndeks Tarihi: 13-06-2021
Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer
Öz: AIM: This study aimed to determine the caregiver burden and the level of perceived social support of caregivers helping with inpatientcare of patients with gynecologic cancer.METHOD: This was a descriptive study. The research sample included 227 caregivers. These caregivers, whose informed consentwas obtained, assisted in the inpatient care in gynecologic oncology clinics of 3 hospitals in Ankara, Turkey. The research data werecollected using an information form developed to define the characteristics of patients and their caregivers. The Zarit Caregiver BurdenScale and the Multidimensional Scale of Perceived Social Support were used.RESULTS: The average caregiving duration of the caregivers was 8.63±13.06 days. Their age, educational status, income, employmentstatus, the number of children and duration of caregiving, sharing the caregiving, the difficulties faced during the caregiving significantlyaffected the caregiver burden and the perceived social support. It was found that there is a moderate, negative, and significantrelationship between the scores of caregiver burden and perceived social support.CONCLUSION: On the basis of these results, the nurses should adopt an integrated approach while providing care for patients withgynecologic cancer and plan the care by including the caregivers.
Anahtar Kelime: Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
- Balfe, M., Butow, P., O’Sullivan, E., Gooberman-Hill, R., Timmons, A., & Sharp, L. (2016). The financial impact of head and neck cancer caregiving: a qualitative study. Psycho-oncology, 25(12), 1441-1447.
- Bradley, S. E., Sherwood, P. R., Kuo, J., Kammerer, C. M., Gettig, E. A., Ren, D., Donovan, H. S., Hricik, A., Newberry, A., & Given, B. (2009). Perceptions of economic hardship and emotional health in a pilot sample of family caregivers. journal of Neuro-Oncology, 93(3), 333-342.
- Chen, K. H., Wells, J. L., Otero, M. C., Lwi, S. J., Haase, C. M., & Levenson, R. W. (2017). Greater experience of negative non-target emotions by patients with neurodegenerative diseases is related to lower emotional well-being in caregivers. Dementia and Geriatric Cognitive Disorders, 44(5-6), 245-255.
- Clark, M.M., Atherton, P.J., Lapid, M.I., Rausch, S.M., Frost, M.H., Cheville, A.L., Hanson, J.M., Garces, Y.I., Brown, P.D., Sloan, J.A., Rrichardson, J.W., Piderman, K.M., & Rummans, T.A. (2013). Caregivers of patients with cancer fatigue: A high level of symptom burden. American Journal of Hospice and Palliative Medicine, 31(2), 121-125.
- Daly, B. J., Douglas, S., Lipson, A., & Foley, H. (2009). Needs of older caregivers of patients with advanced cancer. Journal of the American Geriatric Society, 57, 293–295.
- Dionne-Odom, J. N., Hooker, S. A., Bekelman, D., Ejem, D., McGhan, G., Kitko, L., Strömberg, A., Wells, R., Astin, M. Gok Metin, Z., Mancarella, G., Pamboukian, S.V., Evangelista, L., Buck, H.G., Bakitas, M.A., & On behalf of the IMPACT-HF National Workgroup. (2017). Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: A state-of-the-science review. Heart Failure Reviews, 22(5), 543-557.
- Doherty, L. C., Fitzsimons, D., & McIlfatrick, S. J. (2016). Carers’ needs in advanced heart failure: A systematic narrative review. European Journal of Cardiovascular Nursing, 15(4), 203-212.
- Eker, D., Arkar, H., & Yaldız, H. (2001). Factorial structure, validity, and reliability of revised form of the Multidimensional Scale of Perceived Social Support. Turkish Journal of Psychiatry. 12(1),17-25.
- Foundation for Women’s Cancer. (2015). About gynecologic cancers. Retrieved from: http://www.foundationforwomenscancer.org/about-gynecologic-cancers/. Gok Metin, Z., Karadas, C., Balci, C., & Cankurtaran, M. (2019). The Perceived caregiver burden among Turkish family caregivers providing care for frail older adults. Journal of Transcultural Nursing, 30(3), 222-230.
- Hayran, M., & Hayran, M. (2011). Basic statistics for health research (1st ed). Offset Printing.
- Isikhan, V. (2018). The depression situation of cancer patients’ relatives in Turkey. Clinics in Oncology, 3, 1399.
- İnci, F. H., & Erdem, M. (2008). Validity and reliability of the Turkish version of the burden interview. Journal of Ataturk University School of Nursing, 11(4),85-95.
- Johansen, S., Cvancarova, M., & Ruland, C. (2018). The effect of cancer patients’ and their family caregivers’ physical and emotional symptoms on caregiver burden. Cancer Nursing, 41(2), 91-99.
- Kahriman, F., and Zaybak, A. (2015). Caregiver burden and perceived social support among caregivers of patients with cancer. Asian Pacific Journal of Cancer Prevention, 16(8), 3313-3317.
- Kreitler, S. (2019). The impact of cancer. In Psycho-Oncology for the Clinician (pp. 85-102). Springer,Cham.
- Mashayekhi, F., Jozdani, R. H., Chamak, M. N., & Mehni, S. (2016). Caregiver burden and social support in mothers with β-thalassemia children. Global Journal of Health Science, 8(12), 206-12.
- Milbury K., Badr H., Fossella F., Pisters, K. M., & Carmack, C. L. (2013). Longitudinal associations between caregiver burden and patient and spouse distress in couples coping with lung cancer. Support Care Cancer, 21(9), 2371-2379.
- Oksuz, E., Bariş, N., Arslan, F., & Ates M. A. (2013). Psychiatric symptom levels and burden care of caregivers of patients receiving chemotherapy. Anatolian Journal Clinical Investigation, 7(1), 24-30.
- Papadopoulos, A., Vrettos, I., Kamposioras, K., Anagnostopoulos, F., Giannopoulos, G., Pectasides, D., Niakas, D., & Economopoulos, T. (2011). Impact of cancer patients’ disease awareness on their family members’ health-related quality of life: A cross-sectional survey. Psychooncology, 20(3), 294–301.
- Papastavrou, E., Charalambous, A., & Tsangari, H. (2009). Exploring the other side of cancer care: The informal caregiver. European Journal of Oncology Nursing, 13(2), 128-136.
- Park, C.H., Shin, D. W, Choi, J. Y., Kang, J., Baek, Y. J., Mo, H. N., Lee, M. S., Park, S. J., Park, S. M., & Park, S. (2012). Determinants of the burden and positivity of family caregivers of terminally ill cancer patients in Korea. Psycho-Oncology, 21(3), 282–290.
- Preksha, M., & Kaur, M. R. (2016). Perceived social support and burden among family caregivers of cancer patients. International Journal of Health Sciences and Research, 6, 304-314.
- Public Health Agency. (2017). Turkey cancer statistics. Ankara: Turkey Public Health Agency. pp1-45.
- Seçinti, E., Yavuz, H. M., & Selçuk, B. (2017). Feelings of burden among family caregivers of people with spinal cord injury in Turkey. Spinal Cord, 55(8), 782-787.
- Seo, Y. J., & Park, H. (2019). Factors influencing caregiver burden in families of hospitalized patients with lung cancer. Journal of Clinical Nursing, 28(9-10), 1979-1989.
- Shieh, S. C., Tung, H.S., & Liang, S. Y. (2012). Social support as influencing primary family caregiver burden in Taiwanese patients with colorectal cancer. Journal of Nursing Scholarship, 44(3), 223–231.
- Stenberg, U., C. Vancarova, M., Ekstedt, M., Olsson, M., & Ruland, C. (2014). Family caregivers of cancer patients: perceived burden and symptoms during the early phases of cancer treatment. Social Work in Health Care, 53(3), 289–309.
- Teixeira, R. J., & Pereira, M. G. (2013). Psychological morbidity, burden, and the mediating effect of social support in adult children caregivers of oncological patients undergoing chemotherapy. Psycho-Oncology, 22(7), 1587–1593.
- Wang, L. J., Zhong, W. X., Ji, X. D., & Chen, J. (2016). Depression, caregiver burden and social support among caregivers of retinoblastoma patients in China. International Journal of Nursing Practice, 22(5), 478-485.
- Yakar, H., & Pınar, R. (2013). Evaluation of quality of life among family caregivers of patients with cancer. Journal of Research and Development in Nursing, 15(2),1-16.
- Yaman, S., & Ayaz, S. (2016). Psychological problems experienced by women with gynecological cancer and how they cope with it: A phenomenological study in Turkey. Health & Social Work, 41(3), 173–181.
- Yang, Z., Tian, Y., Fan, Y., Liu, L., Luo, Y., Zhou, L., & Hongmei, Y. (2019). The mediating roles of caregiver social support and self-efficacy on caregiver burden in Parkinson’s disease. Journal of Affective Disorders, 256, 302-308.
- Yeh, P. M., & Chang, Y. (2015). Use of Zarit Burden Interview in analysis of family caregivers’ perception among Taiwanese caring with hospitalized relatives. International Journal of Nursing Practice, 21(5), 622-634.
- Yigitalp, G., Surucu, H. A., Gumus, F., & Evince, E. (2017). Predictors of caregiver burden in primary caregivers of chronic patients. International Journal of Caring Sciences, 10(3), 1168.
- Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20(6), 649-655.
- Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30-41.
| APA | PELİT AKSU S, Şentürk Erenel A (2021). Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. , 113 - 123. 10.5152/FNJN.2021.19085 |
| Chicago | PELİT AKSU Sidika,Şentürk Erenel Ayten Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. (2021): 113 - 123. 10.5152/FNJN.2021.19085 |
| MLA | PELİT AKSU Sidika,Şentürk Erenel Ayten Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. , 2021, ss.113 - 123. 10.5152/FNJN.2021.19085 |
| AMA | PELİT AKSU S,Şentürk Erenel A Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. . 2021; 113 - 123. 10.5152/FNJN.2021.19085 |
| Vancouver | PELİT AKSU S,Şentürk Erenel A Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. . 2021; 113 - 123. 10.5152/FNJN.2021.19085 |
| IEEE | PELİT AKSU S,Şentürk Erenel A "Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer." , ss.113 - 123, 2021. 10.5152/FNJN.2021.19085 |
| ISNAD | PELİT AKSU, Sidika - Şentürk Erenel, Ayten. "Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer". (2021), 113-123. https://doi.org/10.5152/FNJN.2021.19085 |
| APA | PELİT AKSU S, Şentürk Erenel A (2021). Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. Florence Nightingale journal of nursing (Online), 29(1), 113 - 123. 10.5152/FNJN.2021.19085 |
| Chicago | PELİT AKSU Sidika,Şentürk Erenel Ayten Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. Florence Nightingale journal of nursing (Online) 29, no.1 (2021): 113 - 123. 10.5152/FNJN.2021.19085 |
| MLA | PELİT AKSU Sidika,Şentürk Erenel Ayten Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. Florence Nightingale journal of nursing (Online), vol.29, no.1, 2021, ss.113 - 123. 10.5152/FNJN.2021.19085 |
| AMA | PELİT AKSU S,Şentürk Erenel A Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. Florence Nightingale journal of nursing (Online). 2021; 29(1): 113 - 123. 10.5152/FNJN.2021.19085 |
| Vancouver | PELİT AKSU S,Şentürk Erenel A Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer. Florence Nightingale journal of nursing (Online). 2021; 29(1): 113 - 123. 10.5152/FNJN.2021.19085 |
| IEEE | PELİT AKSU S,Şentürk Erenel A "Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer." Florence Nightingale journal of nursing (Online), 29, ss.113 - 123, 2021. 10.5152/FNJN.2021.19085 |
| ISNAD | PELİT AKSU, Sidika - Şentürk Erenel, Ayten. "Caregiver Burden and the Level of Perceived Social Support of Caregivers Helping with Inpatient Care of Patients with Gynecologic Cancer". Florence Nightingale journal of nursing (Online) 29/1 (2021), 113-123. https://doi.org/10.5152/FNJN.2021.19085 |
